Psychosocial Dimensions of Caregiver Support in Geriatric Care:A Thematic Review

Authors

  • Dr. Leah F. Quinto De La Salle Medical and Health Sciences Institute Author
  • Dr. Charito M. Bermido Centro Escolar University Manila Author
  • Dr. Ramon George Atento First Asia Institute of Technology and the Humanities Author https://orcid.org/0009-0001-7598-1443

DOI:

https://doi.org/10.65166/z2dnbk24

Keywords:

caregiver burden, psychosocial support, geriatric caregiving, caregiver identity, meaning-making, coping and resilience,  behavioral gerontology

Abstract

  

Caregiving is often a psychologically demanding role, characterized by emotional demands, role overload, and burnout, which can deplete personal resources, and systemic support for caregivers is frequently lacking (Gutierrez, 2026). This paper presents a thematic review of the scholarly literature on caregiver support in geriatric and dementia care contexts, organized around five interconnected analytical themes: the psychological and behavioral dimensions of caregiver burden; the limitations of existing social support structures; the impact of caregiving on caregiver identity, role strain, and self-efficacy; coping strategies and meaning-making processes; and the evidence base for behavioral and psychosocial support programs. Through interpretive synthesis across these thematic areas, the paper identifies four integrated analytical findings. First, caregiver burden operates as a psychosocially layered phenomenon whose relational-affective and identity-level dimensions remain systematically underaddressed by existing support frameworks. Second, a structural misalignment persists between the functional orientation of dominant support models and the psychosocial needs that caregivers themselves consistently identify as most pressing. Third, caregiver identity and meaning-making constitute the underserved psychosocial core of caregiver experience and represent the most consequential translational gap between theoretical knowledge and applied practice in the field. Fourth, adaptive coping and meaning-making capacity are cultivable human resources that support frameworks must be designed to strengthen rather than merely supplement. The paper concludes with analytically grounded recommendations for research, practice, and policy oriented toward a fundamental reorientation of caregiver support — from functional burden management toward the full-depth engagement with identity, meaning, relational life, and human capacity that caregivers’ experience demands.

Downloads

Download data is not yet available.

References

Adame, J. K. (2026). Adversity Quotient, Resilience and Professional Effectiveness among Helping Professionals. International Journal of Behavioral and Social Analytics, 1(1). https://doi.org/10.65166/gwh4j269

Aguilar, M. R. C. (2026). Presence and search for meaning in life and work and growth mindset in one higher education institution. International Journal of Behavioral and Social Analytics, 1(1). https://doi.org/10.65166/22pcjn49

Ali, A. M., Alkhamees, A. A., Hallit, S., Al-Dwaikat, T., Khatatbeh, H., & Al-Dossary, S. A. (2024). The Depression Anxiety Stress Scale 8: investigating its cutoff scores in relevance to loneliness and burnout among dementia family caregivers. Scientific Reports, 14(1). https://doi.org/10.1038/s41598-024-60127-1

Alspaugh, M. E. L., Stephens, M. A. P., Townsend, A. L., Zarit, S. H., & Greene, R. (1999). Longitudinal patterns of risk for depression in dementia caregivers: Objective and subjective primary stress as predictors. Psychology and Aging, 14(1), 34–43. https://doi.org/10.1037//0882-7974.14.1.34

Antoniou, R., Toli, D. G., Lerner, H., Callahan, P., Coble, R., Ortiz, B. L., Sideman, A. B., Shdo, S. M., Levenson, R. W., Ferreira, N., Moskowitz, J. T., & Rankin, K. P. (2022). A mindfulness-based intervention adapted to dementia caregivers: A study protocol for a randomized clinical control trial. Frontiers in Psychology, 13. https://doi.org/10.3389/fpsyg.2022.1062452

Applebaum, A. J., & Breitbart, W. (2012). Care for the cancer caregiver: A systematic review. Palliative & Supportive Care, 11(3), 231–252. https://doi.org/10.1017/s1478951512000594

Applebaum, A. J., Baser, R. E., Roberts, K. E., Lynch, K., Gebert, R., Breitbart, W., & Diamond, E. L. (2022). Meaning-Centered Psychotherapy for Cancer Caregivers: A pilot trial among caregivers of patients with glioblastoma multiforme. Translational Behavioral Medicine, 12(8), 841–852. https://doi.org/10.1093/tbm/ibac043

Applebaum, A. J., Farran, C. J., Marziliano, A., Pasternak, A. R., & Breitbart, W. (2013). Preliminary study of themes of meaning and psychosocial service use among informal cancer caregivers. Palliative & Supportive Care, 12(2), 139–148. https://doi.org/10.1017/s1478951513000084

Aquino-Malabanan, M. G. (2026). A Confirmatory Factor Analysis on the Risk Factors for Mental Health Challenges among University Students in Calabarzon: Basis for a Dual Continua Wellness Initiative (DCWI). International Journal of Behavioral and Social Analytics, 1(1). https://doi.org/10.65166/fvqyqy91

Atento, R. G., Quinto, L., Espelita, C. A. M., & Castaneda, C. (2025). Integrating business and health analytics: A conceptual framework for dual outcomes in healthcare. International Journal of Health & Business Analytics, 1(1). https://doi.org/10.65166/04pdc866

Atento, R. G. O., Quinto, L. F., & Espelita, C. A. M. H. (2025). Bridging global health workforce gaps 2050: A multilevel analysis of global demand, Philippine supply fragilities, and competency alignment. International Journal of Health and Business Analytics, 1(2), 1–30. https://doi.org/10.65166/kgbpey79

Atento, R. G. O., Quinto, L. F., Espelita, C. A. M., & San Juan, F. M. (2025). Narrative health analytics: Integrating empathy, data, and ethics in patient-centered healthcare. International Journal of Health and Business Analytics, 1(2), 1–33. https://doi.org/10.65166/yxgx8e59

Austin, W. (2017). What Is the Role of Ethics Consultation in the Moral Habitability of Health Care Environments? The AMA Journal of Ethic, 19(6), 595–600. https://doi.org/10.1001/journalofethics.2017.19.6.pfor1-1706

Autio, T., Rissanen, S., & Hämäläinen, J. (2024). The Path Towards Personal Growth in Spousal Caregiving. SAGE Open, 14(4). https://doi.org/10.1177/21582440241294137

Beach, B., Bélanger-Hardy, L., Harding, S. C., Perracini, M. R., Garcia, L., Tripathi, I., Gillis, M., & Dow, B. (2022). Caring for the caregiver: Why policy must shift from addressing needs to enabling caregivers to flourish. Frontiers in Public Health, 10. https://doi.org/10.3389/fpubh.2022.997981

Berwig, M., Heinrich, S., Spahlholz, J., Hallensleben, N., Brähler, E., & Gertz, H. (2017). Individualized support for informal caregivers of people with dementia – effectiveness of the German adaptation of REACH II. BMC Geriatrics, 17(1). https://doi.org/10.1186/s12877-017-0678-y

Bilić, J., Skokandić, L., & Puljak, L. (2022). Anticipatory grief and experience of providing at-home palliative care among informal caregivers of spouses in Croatia: a qualitative study. BMC Palliative Care, 21(1). https://doi.org/10.1186/s12904-022-01093-1

Bongelli, R., Busilacchi, G., Pacifico, A., Fabiani, M., Guarascio, C., Sofritti, F., Lamura, G., & Santini, S. (2024). Caregiving burden, social support, and psychological well-being among family caregivers of older Italians: a cross-sectional study. Frontiers in Public Health, 12, 1474967–1474967. https://doi.org/10.3389/fpubh.2024.1474967

Broek, T. van den, & Grundy, E. (2018). Parental health limitations, caregiving and loneliness among women with widowed parents: longitudinal evidence from France. European Journal of Ageing, 15(4), 369–377. https://doi.org/10.1007/s10433-018-0459-2

Burke, P. J., & Franzoi, S. L. (1988). Studying Situations and Identities Using Experiential Sampling Methodology. American Sociological Review, 53(4), 559–559. https://doi.org/10.2307/2095849

Butcher, H. K., Gordon, J., Ko, J. W., Perkhounkova, Y., Cho, J. Y., Rinner, A., & Lutgendorf, S. K. (2016). Finding Meaning in Written Emotional Expression by Family Caregivers of Persons With Dementia. American Journal of Alzheimer s Disease & Other Dementias®, 31(8), 631–642. https://doi.org/10.1177/1533317516660611

Carpinelli, L., Savarese, G., Russo, C., Stornaiuolo, G., Luisi, E., Pellegrino, F., Mollo, M., & Pellecchia, M. T. (2023). Caregivers’ Burden in Parkinson’s Disease: A Study on Related Features and Attachment Styles. Human Arenas. https://doi.org/10.1007/s42087-023-00350-w

Carretero, S., Garcés, J., Ródenas, F., & López, V. S. (2008). The informal caregiver’s burden of dependent people: Theory and empirical review. Archives of Gerontology and Geriatrics, 49(1), 74–79. https://doi.org/10.1016/j.archger.2008.05.004

Cetrano, G., Tedeschi, F., Rabbi, L., Gosetti, G., Lora, A., Lamonaca, D., Manthorpe, J., & Amaddeo, F. (2017). How are compassion fatigue, burnout, and compassion satisfaction affected by quality of working life? Findings from a survey of mental health staff in Italy. BMC Health Services Research, 17(1). https://doi.org/10.1186/s12913-017-2726-x

Charles, S. T. (2010). Strength and vulnerability integration: A model of emotional well-being across adulthood.. Psychological Bulletin, 136(6), 1068–1091. American Psychological Association. https://doi.org/10.1037/a0021232

Chen, Y., Su, J., Chen, J., Liu, C.-H., Griffiths, M. D., Tsai, H., Chang, C., & Lin, C. (2023). Examining the association between neuropsychiatric symptoms among people with dementia and caregiver mental health: are caregiver burden and affiliate stigma mediators? BMC Geriatrics, 23(1). https://doi.org/10.1186/s12877-023-03735-2

Cheng, S. (2017). Dementia Caregiver Burden: a Research Update and Critical Analysis. Current Psychiatry Reports, 19(9), 64–64. Springer Science+Business Media. https://doi.org/10.1007/s11920-017-0818-2

Cheng, S., Au, A., Losada-Baltar, A., Thompson, L. W., & Gallagher-Thompson, D. (2019). Psychological Interventions for Dementia Caregivers: What We Have Achieved, What We Have Learned. Current Psychiatry Reports, 21(7). Springer Science+Business Media. https://doi.org/10.1007/s11920-019-1045-9

Chiba, R., Miyamoto, Y., Funakoshi, A., HIROTA, M., Hayashi, Y., Yamanouchi, T., Mitsui, M., Inagaki, A., & Cheng, S. (2025). Benefit Finding and Growth Among Family Caregivers of Individuals With Mental Illness: A Scoping Review. PubMed Central, 31(1), 16–30. https://doi.org/10.1177/10748407241309138

Collins, R., & Kishita, N. (2019). Prevalence of depression and burden among informal care-givers of people with dementia: a meta-analysis. Ageing and Society, 40(11), 2355–2392. https://doi.org/10.1017/s0144686x19000527

Connors, C., Norvell, M., & Wu, A. W. (2024). The RISE (Resilience in Stressful Events) Peer Support Program: Creating a Virtuous Cycle of Healthcare Leadership Support for Staff Resilience and Well-Being. Journal of Healthcare Leadership, 537–542. https://doi.org/10.2147/jhl.s487709

Cooke, E., Smith, V., & Brenner, M. (2020). Parents’ experiences of accessing respite care for children with Autism Spectrum Disorder (ASD) at the acute and primary care interface: a systematic review. BMC Pediatrics, 20(1). https://doi.org/10.1186/s12887-020-02045-5

Cormio, C., Romito, F., Viscanti, G., Turaccio, M., Lorusso, V., & Mattioli, V. (2014). Psychological well-being and posttraumatic growth in caregivers of cancer patients. Frontiers in Psychology, 5. https://doi.org/10.3389/fpsyg.2014.01342

Day, J. R., Anderson, R. A., & Davis, L. L. (2014). Compassion Fatigue in Adult Daughter Caregivers of a Parent with Dementia. Issues in Mental Health Nursing, 35(10), 796–804. https://doi.org/10.3109/01612840.2014.917133

Daynes-Kearney, R., & Gallagher, S. (2023). Online Support Groups for Family Caregivers: Scoping Review. Journal of Medical Internet Research, 25. https://doi.org/10.2196/46858

Denham, A. M. J., Wynne, O., Baker, A., Spratt, N. J., Turner, A., Magin, P., Palazzi, K., & Bonevski, B. (2020). An online survey of informal caregivers’ unmet needs and associated factors. PLoS ONE, 15(12). https://doi.org/10.1371/journal.pone.0243502

Ducharme, F., Kergoat, M., Coulombe, R., Lévesque, L., Antoine, P., & Pasquier, F. (2014). Unmet support needs of early-onset dementia family caregivers: a mixed-design study. BMC Nursing, 13(1). https://doi.org/10.1186/s12912-014-0049-3

Eifert, E. K., Adams, R. G., Dudley, W. N., & Perko, M. A. (2015). Family Caregiver Identity: A Literature Review. American Journal of Health Education, 46(6), 357–367. https://doi.org/10.1080/19325037.2015.1099482

El-Ashry, A. M., Elsayed, S. M., Ghoneam, M. A., & Atta, M. H. R. (2023). Compassion fatigue and stress related to cardiopulmonary resuscitation: a study of critical care nurses’ experiences. BMC Nursing, 22(1). https://doi.org/10.1186/s12912-023-01640-y

Espelita, C. A. M. H., & Atento, R. G. O. (2026). Self-efficacy, work environment support, and employee productivity in Philippine trading companies. Journal of Enterprise Strategy & Management Innovation, 1(1). https://doi.org/10.65166/nwv9wg88

Featherstone, K., Northcott, A., & Bridges, J. (2019). Routines of resistance: An ethnography of the care of people living with dementia in acute hospital wards and its consequences. International Journal of Nursing Studies, 96, 53–60. https://doi.org/10.1016/j.ijnurstu.2018.12.009

Franzosa, E., Kelley, L., Dryden, E., Moo, L. R., & Hung, W. W. (2023). HEALTH SYSTEM LEADERSHIP PERSPECTIVES AND PRIORITIES ON CARE FOR OLDER ADULTS. Innovation in Aging, 7, 1053–1053. https://doi.org/10.1093/geroni/igad104.3383

Gangan, N., Rosenthal, M., Arabshomali, A., Holmes, E. R., Banahan, B. F., Shah, R., & Bentley, J. P. (2025). Does the relationship between stress and quality of life differ among informal caregivers of older adults with Alzheimer’s disease and children with autism spectrum disorder? Results from a cross-sectional survey. Journal of Patient-Reported Outcomes, 9(1). https://doi.org/10.1186/s41687-025-00953-7

García-Tizón, S. J., Martínez, M. B. B., Ortiz, M. C. P., & Prados, A. B. N. (2026). Looking at two psychological interventions with family caregivers of people with dementia through their own lenses: lessons learned. BMC Psychology, 14(1). https://doi.org/10.1186/s40359-026-04001-x

Gardner, M. H., Mrug, S., Schwebel, D. C., Phipps, S., Whelan, K., & Madan-Swain, A. (2015). Demographic, medical, and psychosocial predictors of benefit finding among caregivers of childhood cancer survivors. Psycho-Oncology, 26(1), 125–132. https://doi.org/10.1002/pon.4014

Giombi, K., D’Angelo, S., Shenkar, E., Kirsch, S., Poehler, D., & Khavjou, O. (2026). Differences in patient access to and utilization of caregiving services: a scoping review. BMC Health Services Research. https://doi.org/10.1186/s12913-026-14168-z

Gonyea, J. G., O’Connor, M. K., Carruth, A., & Boyle, P. A. (2005). Subjective appraisal of Alzheimer’s disease caregiving: The role of self-efficacy and depressive symptoms in the experience of burden. American Journal of Alzheimer s Disease & Other Dementias®, 20(5), 273–280. https://doi.org/10.1177/153331750502000505

Gozzoli, C., Gazzaroli, D., & D’Angelo, C. (2018). Who Cares for Those Who Take Care? Risks and Resources of Work in Care Homes. Frontiers in Psychology, 9. https://doi.org/10.3389/fpsyg.2018.00314

Greenhalgh, T., Thorne, S., & Malterud, K. (2018). Time to challenge the spurious hierarchy of systematic over narrative reviews? European Journal of Clinical Investigation, 48(6). https://doi.org/10.1111/eci.12931

Gutierrez, E. (2026). Lived experiences of compassion, guilt, and forgiveness of a secondary survivor with symptoms of Post Traumatic Stress Disorder (PTSD). International Journal of Behavioral and Social Analytics, 1(1). https://doi.org/10.65166/9g8tjz83

Ham, A. (2023). Who cares? Tinkering with values in geriatric care by first-generation immigrant newcomers and established caregivers in a German residential home. Humanities and Social Sciences Communications, 10(1). https://doi.org/10.1057/s41599-023-02173-0

Hidalgo-Andrade, P., & Rodríguez, S. M. (2020). Development of a cognitive-existential intervention to decrease compassion fatigue in formal caregivers. Interdisciplinaria Revista de Psicología y Ciencias Afines, 37(2), 239–251. https://doi.org/10.16888/interd.2020.37.2.15

Holden, R. J., Schubert, C. C., & Mickelson, R. S. (2014). The patient work system: An analysis of self-care performance barriers among elderly heart failure patients and their informal caregivers. Applied Ergonomics, 47, 133–150. https://doi.org/10.1016/j.apergo.2014.09.009

Hoppes, S., Bryce, H., Hellman, C. M., & Finlay, E. (2012). The Effects of Brief Mindfulness Training on Caregivers’ Well-Being. Activities Adaptation & Aging, 36(2), 147–166. https://doi.org/10.1080/01924788.2012.673154

Iždonaitė-Medžiūnienė, I., & Preikšaitienė, L. (2024). Disposition of improving quality of life in older adults: the case of Lithuania. Aging Clinical and Experimental Research, 36(1). https://doi.org/10.1007/s40520-023-02687-2

Jabeen, S., Zakar, R., Zakar, M. Z., & Fischer, F. (2024). Experiences of family caregivers in dealing with cases of advanced breast cancer: a qualitative study of the sociocultural context in Punjab, Pakistan. BMC Public Health, 24(1). https://doi.org/10.1186/s12889-024-18404-1

Kahn, W. A. (1993). Caring for the Caregivers: Patterns of Organizational Caregiving. Administrative Science Quarterly, 38(4), 539–539. https://doi.org/10.2307/2393336

Kajiyama, B., Thompson, L. W., Eto-Iwase, T., Yamashita, M., Mario, J. D., Tzuang, M., & Gallagher-Thompson, D. (2013). Exploring the effectiveness of an Internet-based program for reducing caregiver distress using the iCare Stress Management e-Training Program. Aging & Mental Health, 17(5), 544–554. https://doi.org/10.1080/13607863.2013.775641

Kernisan, L. P., Sudore, R. L., & Knight, S. J. (2010). Information-Seeking at a Caregiving Website: A Qualitative Analysis. Journal of Medical Internet Research, 12(3). https://doi.org/10.2196/jmir.1548

Kolthoff, K. L., & Hickman, S. E. (2016). Compassion fatigue among nurses working with older adults. Geriatric Nursing, 38(2), 106–109. https://doi.org/10.1016/j.gerinurse.2016.08.003

Kovaleva, M., Spangler, S. A., Clevenger, C., & Hepburn, K. (2018). Chronic Stress, Social Isolation, and Perceived Loneliness in Dementia Caregivers. Journal of Psychosocial Nursing and Mental Health Services, 56(10), 36–43. https://doi.org/10.3928/02793695-20180329-04

Kubitza, J., Steinmaier, V., Lauer, N., Pendergrass, A., & Frick, E. (2025). Spiritual Coping in the Process of Home Care Among Family Caregivers: A Qualitative Longitudinal Study in Germany. Health & Social Care in the Community, 2025(1). https://doi.org/10.1155/hsc/4904219

Leslie, M., Gray, R. P., Eales, J., Fast, J., Magnaye, A., & Khayatzadeh-Mahani, A. (2020). The care capacity goals of family carers and the role of technology in achieving them. BMC Geriatrics, 20(1). https://doi.org/10.1186/s12877-020-1455-x

Li, L., Wister, A., & Mitchell, B. (2020). Social Isolation Among Spousal and Adult-Child Caregivers: Findings From the Canadian Longitudinal Study on Aging. The Journals of Gerontology Series B, 76(7), 1415–1429. https://doi.org/10.1093/geronb/gbaa197

Liebenberg, L. (2020). Reconsidering interactive resilience processes in mental health: Implications for child and youth services. Journal of Community Psychology, 48(5), 1365–1380. https://doi.org/10.1002/jcop.22331

Lim, J., & Zebrack, B. (2004). Caring for family members with chronic physical illness: a critical review of caregiver literature.. Health and Quality of Life Outcomes, 2(1). https://doi.org/10.1186/1477-7525-2-50

Lindt, N., Berkel, J. van, & Mulder, B. C. (2020). Determinants of overburdening among informal carers: a systematic review. BMC Geriatrics, 20(1). https://doi.org/10.1186/s12877-020-01708-3

Liu, Z., Sun, Y., & Zhong, B. (2018). Mindfulness-based stress reduction for family carers of people with dementia. Cochrane Library, 2018(8). https://doi.org/10.1002/14651858.cd012791.pub2

Manibo, J. (2026). Trauma Symptoms, Self-Compassion and Self Forgiveness among Individuals Engaged in Non-Suicidal Self Injury: A Multiple Case Study. International Journal of Behavioral and Social Analytics, 1(1). https://doi.org/10.65166/b84gdn19

Mazanec, S. R., Blackstone, E., & Daly, B. J. (2021). Building family caregiver skills using a simulation-based intervention for care of patients with cancer: protocol for a randomized controlled trial. BMC Nursing, 20(1). https://doi.org/10.1186/s12912-021-00612-4

McCabe, M. P., You, E., & Tatangelo, G. (2016). Hearing Their Voice: A Systematic Review of Dementia Family Caregivers’ Needs. The Gerontologist, 56(5). https://doi.org/10.1093/geront/gnw078

McGrory, A., Boudreau, J., Kelley, L., Desir, M., & Dryden, E. (2025). Using Caregiver Stories to Better Understand Burden and Assess Need. Innovation in Aging, 9. https://doi.org/10.1093/geroni/igaf122.1086

McNichol, S. (2023). Mid-day supervisors in English primary schools: a role theory perspective. Education 3-13, 1–11. https://doi.org/10.1080/03004279.2023.2169585

Mitchell, L., Likhterman, M., Concepcion, L. S., Child, S., Halwani, Z., & Kavanagh, G. (2025). Identity Resolution in the Context of Dementia Caregiving: A Longitudinal Study. Innovation in Aging, 9. https://doi.org/10.1093/geroni/igaf122.2978

Montgomery, R. J. V., & Kosloski, K. (2009). Caregiving as a Process of Changing Identity: Implications for Caregiver Support. 33(1), 47. https://www.questia.com/library/journal/1P3-1862957581/caregiving-as-a-process-of-changing-identity-implications

Mroz, E. L., Monin, J. K., Gaugler, J. E., Matta-Singh, T. D., & Fried, T. R. (2023). Rewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework. The Gerontologist, 64(2). https://doi.org/10.1093/geront/gnad040

Mudiyanselage, C. A. K. R. A., Ewens, B., Smyth, A., Dickson, J. M., & Ang, S. G. M. (2024). Enablers and Barriers of Online Mindfulness-Based Interventions for Informal Carers: A Mixed-Methods Systematic Review.

Mindfulness, 15(6), 1257–1274. https://doi.org/10.1007/s12671-024-02365-y

Namkoong, K., DuBenske, L. L., Shaw, B., Gustafson, D. H., Hawkins, R. P., Shah, D. V., McTavish, F., & Cleary, J. F. (2011). Creating a Bond Between Caregivers Online: Effect on Caregivers’ Coping Strategies. Journal of Health Communication, 17(2), 125–140. https://doi.org/10.1080/10810730.2011.585687

Newman, K., Wang, A., Wang, A. Z. Y., & Hanna, D. (2019). The role of internet-based digital tools in reducing social isolation and addressing support needs among informal caregivers: a scoping review. BMC Public Health, 19(1). https://doi.org/10.1186/s12889-019-7837-3

Orzeck, P., & Silverman, M. (2008). RECOGNIZING POST-CAREGIVING AS PART OF THE CAREGIVING CAREER: IMPLICATIONS FOR PRACTICE. Journal of Social Work Practice, 22(2), 211–220. https://doi.org/10.1080/02650530802099866

Petrovic, M., Bonanno, S., Landoni, M., Ionio, C., Hagedoorn, M., & Gaggioli, A. (2022). Using the Transformative Storytelling Technique to Generate Empowering Narratives for Informal Caregivers: Semistructured Interviews, Thematic Analysis, and Method Demonstration. JMIR Formative Research, 6(8). https://doi.org/10.2196/36405

Phongtankuel, V., Moxley, J., Reid, M. C., Adelman, R. D., & Czaja, S. J. (2022). The relationship of caregiver self-efficacy to caregiver outcomes: a correlation and mediation analysis. Aging & Mental Health, 27(7), 1322–1328. https://doi.org/10.1080/13607863.2022.2118666

Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250–267. https://doi.org/10.1037/0882-7974.18.2.250

Ploeg, J., Markle-Reid, M., Valaitis, R., McAiney, C., Duggleby, W., Bartholomew, A., & Sherifali, D. (2017). Web-Based Interventions to Improve Mental Health, General Caregiving Outcomes, and General Health for Informal Caregivers of Adults With Chronic Conditions Living in the Community: Rapid Evidence Review. Journal of Medical Internet Research, 19(7). https://doi.org/10.2196/jmir.7564

Plöthner, M., Schmidt, K., Jong, L. de, Zeidler, J., & Damm, K. (2019). Needs and preferences of informal caregivers regarding outpatient care for the elderly: a systematic literature review. BMC Geriatrics, 19(1). https://doi.org/10.1186/s12877-019-1068-4

Rathnayake, S., Jones, C., Calleja, P., & Moyle, W. (2019). Family carers’ perspectives of managing activities of daily living and use of mHealth applications in dementia care: A qualitative study. Journal of Clinical Nursing, 28, 4460–4470. https://doi.org/10.1111/jocn.15030

Rocard, E., & Llena-Nozal, A. (2022). Supporting informal carers of older people. OECD Health Working Papers. https://doi.org/10.1787/0f0c0d52-en

Rodríguez, L. M., Brito, M. J. V. D., de, E. L. H. M., Hernández-Lugo, M. de la C., & Castillo, E. F. (2025). Cognitive behavioral interventions for emotional management in the caregiver population. A systematic review. Región Científica. https://doi.org/10.58763/rc2025363

Rosenberg, A. R., Bradford, M. C., Junkins, C. C., Taylor, M., Zhou, C., Sherr, N., Kross, E. K., Curtis, J. R., & Yi-Frazier, J. P. (2019). Effect of the Promoting Resilience in Stress Management Intervention for Parents of Children With Cancer (PRISM-P). JAMA Network Open, 2(9). https://doi.org/10.1001/jamanetworkopen.2019.11578

Sadler, K. (2016). The price of compassion—Letting go of your ideals to provide better care. Canadian Oncology Nursing Journal, 26(3), 233–237. https://doi.org/10.5737/23688076263233237

San Juan, F. M. Z. (2026). Measuring the Human Condition in the Digital Age: Behavioral and Social Analytics for Well-Being, Integrity, and Growth. International Journal of Behavioral and Social Analytics, 1(1).

Schulz, R., Beach, S. R., Czaja, S. J., Martire, L. M., & Monin, J. K. (2020). Family Caregiving for Older Adults. Annual Review of Psychology, 71(1), 635–659. https://doi.org/10.1146/annurev-psych-010419-050754

Scranton, B., & Doherty, M. (2024). Project LISTEN: Foundations and Development of a Peer Empowerment Program for Caregivers of Children with Variations of Sex Characteristics. Clinical Social Work Journal. https://doi.org/10.1007/s10615-024-00946-x

See, Y. N., Khor, P. F., Koh, H. Y., Leung, P., Casado, R. del P., & Orgeta, V. (2022). Anger and Dementia Caregiving: A Systematic Review of the Effects of Anger and Hostility on Caregivers’ Physical Health. Journal of Alzheimer s Disease Reports, 6(1), 685–698. https://doi.org/10.3233/adr-220040

Sequeira, C., Sampaio, F., Pinho, L. G. de, Araújo, O., Lluch, M., & Sousa, L. R. D. S. D. (2022). Mental Health Literacy: How to Obtain and Maintain Positive Mental Health. In Frontiers research topics. https://doi.org/10.3389/978-2-8325-0599-1

Shi, J. M., Wang, K., Yoo, D. W., Karkar, R., & Saha, K. (2025). Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer’s and Dementia Caregivers. arXiv (Cornell University). https://doi.org/10.48550/arxiv.2506.14196

Shi, J. M., Yoo, D. W., Wang, K., Rodriguez, V. J., Karkar, R., & Saha, K. (2025). Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer’s and Dementia Caregivers. arXiv (Cornell University). https://doi.org/10.48550/arxiv.2506.15047

Skaff, M. M., & Pearlin, L. I. (1992). Caregiving: Role Engulfment and the Loss of Self. The Gerontologist, 32(5), 656–664. https://doi.org/10.1093/geront/32.5.656

Sklenarova, H., Krümpelmann, A., Haun, M. W., Friederich, H., Huber, J., Thomas, M., Winkler, E. C., Herzog, W., & Hartmann, M. (2015). When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors. Cancer, 121(9), 1513–1519. https://doi.org/10.1002/cncr.29223

Song, Y., Hoben, M., Norton, P., & Estabrooks, C. A. (2020). Association of Work Environment With Missed and Rushed Care Tasks Among Care Aides in Nursing Homes. JAMA Network Open, 3(1). https://doi.org/10.1001/jamanetworkopen.2019.20092

Stuckey, J. C. (2003). Faith, Aging, and Dementia. Dementia, 2(3), 337–352. https://doi.org/10.1177/14713012030023004

Svec, J., Chu, J., Kim, E., & Hwang, I. J. (2025). Caregiver Support Access and the Information Landscape: A Study of Information Sources and Formal Support Use. Innovation in Aging, 9. https://doi.org/10.1093/geroni/igaf122.4392

Sörensen, S., & Conwell, Y. (2011). Issues in Dementia Caregiving: Effects on Mental and Physical Health, Intervention Strategies, and Research Needs. American Journal of Geriatric Psychiatry, 19(6), 491–496. https://doi.org/10.1097/jgp.0b013e31821c0e6e

Sörensen, S., Pinquart, M., & Duberstein, P. R. (2002). How Effective Are Interventions With Caregivers? An Updated Meta-Analysis. The Gerontologist, 42(3), 356–372. https://doi.org/10.1093/geront/42.3.356

Theis, S. L., Biordi, D. L., Coeling, H., Nalepka, C. D., & Miller, B. (2003). Spirituality in Caregiving and Care Receiving. Holistic Nursing Practice, 17(1), 48–55. https://doi.org/10.1097/00004650-200301000-00010

Trail, T. E., Friedman, E. M., Rutter, C. M., & Tanielian, T. (2020). The Relationship Between Engagement in Online Support Groups and Social Isolation Among Military Caregivers: Longitudinal Questionnaire Study. Journal of Medical Internet Research, 22(4). https://doi.org/10.2196/16423

Tronick, E., & Beeghly, M. (2010). Infants’ meaning-making and the development of mental health problems. American Psychologist, 66(2), 107–119. https://doi.org/10.1037/a0021631

Vasileiou, K., Barnett, J., Barreto, M., Vines, J., Atkinson, M. A., Lawson, S., & Wilson, M. (2017). Experiences of Loneliness Associated with Being an Informal Caregiver: A Qualitative Investigation. Frontiers in Psychology, 8. https://doi.org/10.3389/fpsyg.2017.00585

Walker, R., & Pomeroy, E. C. (1997). The Impact of Anticipatory Grief on Caregivers of Persons with Alzheimer’s Disease. Home Health Care Services Quarterly, 16, 55–76. https://doi.org/10.1300/j027v16n01_05

Ward, C. R. (1986). The meaning of role strain. Advances in Nursing Science, 8(2), 39–50. https://doi.org/10.1097/00012272-198601000-00008

Warren, A. (2023). The relationship between perceived stigma and perceived stress in cognitive decline: a survey of persons with mild cognitive impairment and their caregivers. Frontiers in Psychology, 14. https://doi.org/10.3389/fpsyg.2023.1293284

White, Z. (2023). Re-envisioning Digital Equity and Connection Literacy for Older Adults. North Carolina Medical Journal, 84(2). https://doi.org/10.18043/001c.73013

Wiegelmann, H., Speller, S., Verhaert, L.-M., Schirra-Weirich, L., & Wolf-Ostermann, K. (2021). Psychosocial interventions to support the mental health of informal caregivers of persons living with dementia – a systematic literature review. BMC Geriatrics, 21(1). https://doi.org/10.1186/s12877-021-02020-4

Wright, S. D., Lund, D. A., Pett, M. A., & Caserta, M. S. (1987). The Assessment of Support Group Experiences by Caregivers of Dementia Patients. Clinical Gerontologist, 6(4), 35–60. https://doi.org/10.1300/j018v06n04_05

Yanos, P. T., Roe, D., & Lysaker, P. H. (2011). Narrative Enhancement and Cognitive Therapy: A New Group-Based Treatment for Internalized Stigma Among Persons with Severe Mental Illness. International Journal of Group Psychotherapy, 61(4), 576–595. https://doi.org/10.1521/ijgp.2011.61.4.576

Young, A., Froggatt, K., & Brearley, S. (2017). ‘Powerlessness’ or ‘doing the right thing’ – Moral distress among nursing home staff caring for residents at the end of life: An interpretive descriptive study. Palliative Medicine, 31(9), 853–860. https://doi.org/10.1177/0269216316682894

Yu, D. S. F., Cheng, S., & Kwok, T. (2021). An integrative theoretical model to predict positive aspects of caregiving in dementia. Innovation in Aging, 5, 791–791. https://doi.org/10.1093/geroni/igab046.2918

Yüce, G. E., Döner, A., Bilgin, A., & Muz, G. (2024). The effect of mindfulness-based interventions on caregiver burden, quality of life and psychological distress in caregivers of adults with chronic diseases: Systematic review and meta-analysis of randomized controlled trials. Worldviews on Evidence-Based Nursing, 21(5), 528–541. https://doi.org/10.1111/wvn.12736

Zhang, H., & Wang, X. (2024). Constructing Doctoral Students’ Professional Identity: Based on the Perspective of Identity Theory. In IntechOpen eBooks. https://doi.org/10.5772/intechopen.1004065

Downloads

Published

2026-05-29